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CreakyJoints
США
Добавлен 11 апр 2008
CreakyJoints® is an international digital community for millions of patients and caregivers worldwide who seek education, support, advocacy, and patient-centered research. We represent patients through our popular social media channels, our website creakyjoints.org, and the 50-State Network, which includes more than 1,500 trained volunteer patient activists.
The Global Healthy Living Foundation (GHLF) is the parent organization of CreakyJoints®. Via CreakyJoints®, GHLF also hosts PainSpot (PainSpot.org), a digital risk-assessment tool for musculoskeletal conditions and injuries, eRheum (eRheum.org), for telehealth and virtual-care support, and a constantly refreshed library of podcasts via the GHLF Podcast Network. GHLF oversees the patient-reported outcomes registry PatientSpot™ with 50,000 consented patients who track their disease while volunteering to participate in longitudinal and observational research.
The Global Healthy Living Foundation (GHLF) is the parent organization of CreakyJoints®. Via CreakyJoints®, GHLF also hosts PainSpot (PainSpot.org), a digital risk-assessment tool for musculoskeletal conditions and injuries, eRheum (eRheum.org), for telehealth and virtual-care support, and a constantly refreshed library of podcasts via the GHLF Podcast Network. GHLF oversees the patient-reported outcomes registry PatientSpot™ with 50,000 consented patients who track their disease while volunteering to participate in longitudinal and observational research.
The Gout Show Season 2 - Episode - Living with Gout: Myths, Realities, and Expert Insights
After living with gout for 16 years without proper treatment, Gary Ho finally connected with rheumatologist Dr. Chris Parker to find the care he was looking for. Now, Gary and Dr. Parker work alongside patients and specialists to better understand the complexities with diagnosing and treating gout.
In this episode, nephrologist Dr. Nissreen Elfadawy, Dr. Parker and patient advocate Gary, explore the complexities of gout, highlighting the importance of treating it as a systemic disease. Join them as they debunk common gout myths, discuss key treatment considerations, and share ways to seek support.
This podcast was made possible with support from Amgen.
We want to hear what you think. Send y...
In this episode, nephrologist Dr. Nissreen Elfadawy, Dr. Parker and patient advocate Gary, explore the complexities of gout, highlighting the importance of treating it as a systemic disease. Join them as they debunk common gout myths, discuss key treatment considerations, and share ways to seek support.
This podcast was made possible with support from Amgen.
We want to hear what you think. Send y...
Просмотров: 11 155
Видео
The Gout Show Season 2 - Audio Guide - Navigating Gout: From Myth to Realities
Просмотров 11 тыс.3 месяца назад
In this audio guide, Dr. Nissreen Elfadawy and Dr. Chris Parker discuss gout, highlighting its reality as a systemic disease rather than a joint disease. They further discuss the roles of diet, lifestyle, and medicine for people with gout. Join The Gout Show and learn from these experts as they discuss common gout myths and the best practices for managing and treating the causes and symptoms of...
Audio Guide 2: Managing and Treating Inflammation
Просмотров 6 тыс.6 месяцев назад
Fight Back Against Inflammation: A Patient’s Guide Audio Guide - Part Two Dr. Jeff Stark, Rheumatologist and Head of Immunology Medical at UCB, shares tips on how to talk with your health care team, what treatments are out there, how lifestyle changes can help, and what you can do to feel your best every day. Let's take positive steps towards fighting inflammation together. "Fight Back Against ...
Audio Guide 1: Understanding and Identifying Inflammation
Просмотров 6 тыс.6 месяцев назад
Fight Back Against Inflammation: A Patient’s Guide Audio Guide - Part One Dr. Jeff Stark, Rheumatologist and Head of Immunology Medical at UCB, shares his expertise on inflammation. He'll help us understand why inflammation matters, what signs to look out for, how it affects our daily lives, and how doctors check for it. Let's unravel the mystery of inflammation together. "Fight Back Against In...
S2, Ep 5- Empathy and Planning: Navigating Caregiving Across Generations with Danielle and Cora
Просмотров 5787 месяцев назад
Thriving While Aching - Season 2 - Episode 5 In this episode, we delve into the multifaceted world of caregiving with Danielle, a certified financial planner and caregiver for her mother, and Cora, a caregiver for her aging mother who is juggling aches and pains. Danielle and Cora share their personal journeys of balancing self-care while providing unwavering support to their loved ones. From c...
S2, Ep 4- Companionship on the Trail: Alyssa's Path to Caregiving
Просмотров 7 тыс.7 месяцев назад
Thriving While Aching - Season 2 - Episode 4 In this episode, we explore a unique facet of caregiving as Alyssa, a young woman passionate about hiking, unexpectedly forges a deep bond with an older woman (lovingly known as “new grandma”) who she met while walking her service dog Kernel. This chance encounter grows into a meaningful companionship enriched by shared walks, a mutual love for dogs ...
S2, Ep 3- Filling the Gaps, From Challenge to Change: Aisha's Story of Resilience
Просмотров 2 тыс.7 месяцев назад
Thriving While Aching - Season 2 - Episode 3 In this episode, we dive into the unique story of Aisha, a young Black woman who stepped into the role of caregiver when her mother was diagnosed with frontotemporal dementia. Facing the dual challenges of her youth and a lack of resources tailored for her cultural background, Aisha's journey is one of remarkable resilience and innovation. Aisha shar...
S2, Ep 2- Olivia and Her Father: Weaving Stories of Care and Connection
Просмотров 4,3 тыс.8 месяцев назад
Thriving While Aching - Season 2 - Episode 2 In this touching episode, join Olivia as she navigates the intricacies of caring for her father, who is battling lung cancer. Despite her own struggles with chronic migraine, Olivia finds unique ways to bring joy and empowerment to her father's life. From daily texts to engaging conversations in her father's native language, Tagalog, each interaction...
S2, Ep 1- Riding Through Life: Marilyn's Story of Thriving and Adaptation with Her Partner
Просмотров 3,7 тыс.8 месяцев назад
Thriving While Aching - Season 2 - Episode 1 In this episode of Thriving While Aching, we meet Marilyn, who lives in Salt Lake City, Utah, with her husband, Joel, who has arthritis and was first introduced in Season 1. This season focuses on how caregivers and care partners can help their loved ones thrive as they age. Marilyn shares how she keeps Joel and herself mentally and physically active...
Meditación Guiada para la Paz Interior: ¡Transforma tu Vida en 15 Minutos! 🌟🧘♀️
Просмотров 1958 месяцев назад
Descubre la meditación guiada. ¡Sumérgete en esta experiencia de relajación profunda de 15 minutos y comienza a transformar tu vida hoy! Encuentra la paz interior, reduce el estrés y mejora tu bienestar emocional. ¡Únete a nosotros y comparte esta aventura con tus seres queridos! 🌈🌴 #MeditaciónGuiada #PazInterior #AméricaLatina"
The Importance of Nutrition in Managing Rheumatoid Arthritis
Просмотров 3,7 тыс.11 месяцев назад
When discussing health and nutrition, a one-size-fits-all approach simply doesn't suffice. The relationship between food, health, and culture is deeply intertwined, with each culture bringing its unique culinary heritage, traditions, and nutritional perspectives to the table. Recognizing this, Dietitian, Christina Montoya, will delve into the intrinsic cultural considerations that play a pivota...
La Importancia de la Nutrición para Manejar la Artritis Reumatoide
Просмотров 62811 месяцев назад
Cuando se habla de salud y nutrición, un enfoque único para todos simplemente no es suficiente. La relación entre la comida, la salud y la cultura está profundamente entrelazada, y cada cultura aporta su culinario único, tradiciones y perspectivas nutricionales a la mesa. Reconociendo esto, la dietista, Christina Montoya, habla de las consideraciones culturales que juegan un papel fundamental e...
Sarah R Shaw, Senior Manager, BIPOC Community Outreach
Просмотров 7311 месяцев назад
Sarah R Shaw, Senior Manager, BIPOC Community Outreach
Corey Greenblatt, MPH Associate Director of Policy and Advocacy
Просмотров 2011 месяцев назад
Corey Greenblatt, MPH Associate Director of Policy and Advocacy
Anne M Sydor, PhD Director, Research Development and Communications
Просмотров 7911 месяцев назад
Anne M Sydor, PhD Director, Research Development and Communications
Meditación centrada en palabras de afirmación, amor propio y paz interior
Просмотров 17 тыс.11 месяцев назад
Meditación centrada en palabras de afirmación, amor propio y paz interior
The Many Facets of Hispanic Identity: A Candid Conversation Across Generations
Просмотров 13 тыс.11 месяцев назад
The Many Facets of Hispanic Identity: A Candid Conversation Across Generations
Bridging Health Equity: A Conversation on Providing Quality Healthcare for the Hispanic Community
Просмотров 3,9 тыс.11 месяцев назад
Bridging Health Equity: A Conversation on Providing Quality Healthcare for the Hispanic Community
Ejercicios de Mano: Guía Rápida para Fortalecer y Aliviar Dolor
Просмотров 66811 месяцев назад
Ejercicios de Mano: Guía Rápida para Fortalecer y Aliviar Dolor
Meditación para Estimular el Nervio Vago: Relajación Profunda y Bienestar
Просмотров 4,6 тыс.11 месяцев назад
Meditación para Estimular el Nervio Vago: Relajación Profunda y Bienestar
Meditación Guiada de 15 Min. para Minimizar el Dolor Crónico: Empieza Tu Día con Serenidad y Energía
Просмотров 41711 месяцев назад
Meditación Guiada de 15 Min. para Minimizar el Dolor Crónico: Empieza Tu Día con Serenidad y Energía
S2-Ep.3 I Dr. Ruderman’s Insights: Collaborative Care & Individualized Management Strategies for PsA
Просмотров 9 тыс.11 месяцев назад
S2-Ep.3 I Dr. Ruderman’s Insights: Collaborative Care & Individualized Management Strategies for PsA
S2 - Episode 2 I Jonathan's Journey: Confronting Fears and Finding a Treatment Path
Просмотров 12 тыс.11 месяцев назад
S2 - Episode 2 I Jonathan's Journey: Confronting Fears and Finding a Treatment Path
S2 - Audio Guide I Collaborating with Your Rheumatologist
Просмотров 13 тыс.11 месяцев назад
S2 - Audio Guide I Collaborating with Your Rheumatologist
S2 - Episode 1 I Ashley's Journey: From Reluctance to Resilience in Managing Psoriatic Arthritis
Просмотров 16 тыс.11 месяцев назад
S2 - Episode 1 I Ashley's Journey: From Reluctance to Resilience in Managing Psoriatic Arthritis
Patient Perspectives of RA Blood Work - EULAR 2023 - Dr. Ben Nowell
Просмотров 424Год назад
Patient Perspectives of RA Blood Work - EULAR 2023 - Dr. Ben Nowell
Artritis Reumatoide| Qué es, causas, síntomas y tratamientos completos
Просмотров 20 тыс.Год назад
Artritis Reumatoide| Qué es, causas, síntomas y tratamientos completos
Understanding Specialty Pharmacy for Psoriasis | CreakyJoints
Просмотров 244Год назад
Understanding Specialty Pharmacy for Psoriasis | CreakyJoints
Talking to Your Family and Friends About Rheumatoid Arthritis: RA Patients Share Their Experience
Просмотров 2 тыс.Год назад
Talking to Your Family and Friends About Rheumatoid Arthritis: RA Patients Share Their Experience
Most doctor test for seropositive rheumatoid conditions with blood test to find inflammation makers, the problem is Ankylosing Spondylitis is a seronegative condition and inflammation makers my not be present in blood test. Most doctors assign lupus to black people and AS to white people, which causes misdiagnosis and lost treatment and further degeneration because less black peoples “have” AS but when they do symptoms are worst than other races.
I am a black man with AS with a mother who had AS who was misdiagnosed for years 🙏🏾💚
Buenas noches. Dios te bendiga y te ilumine para continuar ayudando a la Humanidad.❤
I have both
Muchas gracias me gusto mucho esta relajacion y meditacion
Infinitas gracias. Soy Carmen desde Venezuela. Me encanta meditar. Dios te Bendiga 🙏😇
Muchas gracias me ayudo muchisio desde chile❤
Excelente David Granados, soy chilena, pero vivo en Alemania .
People with Ankylosing spondylitis feel alone all the time. No one will understand you.
Yo estoy en inicio de análisis clínicos para diagnosticar artritis y el perfil reumático sale negativo a pesar de tener todos los síntomas, inflamación, dolor, rigidez, fatiga, malestar general, etc. (Los demás resultados salen elevados), ya tengo varios años con dolor y rigidez, pero con inflamación y fatiga a penas llevo alrededor de 3 meses, por ahora me atiende un médico general y está esperando a los nuevos análisis clínicos para ver si sale positivo y así enviarme con un reumatólogo. Me podría asesorar que puedo hacer si salen los nuevos estudios negativo? Ojalá que me pueda leer, tengo 53 años y no me gustaría empezar con deformidades en manos pues soy estilista 😔
Thanks for reminding me to be gentle with myself
BUENÍSIMO !! Gracias ❤
Me gustó mucho porque si hago meditaciones más largas me suelo quedar dormida y no siempre tengo el espacio para ello.
Gracias David, DIOS te lo pague
in a white woman and the same thing happened to me in the military mine started in 1989, i was just diagnosed 3 weeks ago.
My white friend was just DX with it. Bless you dear.
I was told I had a very mild case of Spina bifida at 18. At 55 my disc herniated I had to hear a different diagnosis each time I saw a new doctor. Same situation osteoarthritis, spinal stenosis, si joint dis function, finally I asked if I had AS and was told yes. I can definitely relate to this story.
Uiero q me diga q pastillas podre yo tomar para q se me desinflame y se me quiten los dolores tengo artritis y artrosi
❤❤❤
I too am a black woman with AS. I have sero negative arthritis and arthritis meaning it doesn’t show on blood tests but it’s present. I have chronic AS because I can’t even get out of the bed because of my back pain. I hurt! And I don’t get any family support because they don’t understand. Older woman in my family doesn’t even have arthritis and they can’t fathom the pain. Like I am making up my pain. I am having a year flare up with no relief. I was on skyrizi with no help. I am on humira now! Methotrexate and prednisone didn’t work for me.
I guess I'm lucky to have been diagnosed with both 😅
Un médico pakistaní me dijo que si me pongo ozono 5 a la semama rectal por 2 meses, se para la enfermedad totalmente. Voy un mes con una mejora poca. Cree q eso reemplaze los DMARDS? :(
thanku
Gracias Dr. por su valiosa información. Es tan importante conocer la 20:36 enfermedad, entenderla y tratarla. Tengo los mejores médicos en HCAM, Ecuador.
Identity the root cause and solve it.
solo tengo unas dudas los esteroides que tiempo se debe tomar?
muy buena la información los que padecemos de esta condición debemos estar muy bien informados respecto de nuestros síntomas y medicasmentos
Gracias por este vídeo a sido muinportante
Infinitas gracias
My back is always sore af and I'm only 24.. I'm a machinist so I stand 10hours a day and constantly put heavy material into my lathe. Wish I could use my other side of the body but my spindle is always on the same side 😥 I wake up on Monday after not doing anything all weekend and my back is wrecked some how
2:02
Gracias David por esta meditación y por los ejercicios, es maravilloso saber y sentir que puedes sentirte mejor. Gracias gracias gracias, Namasté ❤
Tengo una amiga enferma kusiera conprarle algo k l conpro xfa digame
Eres una gran amiga. A la mayoría no les importa y se alejan
Kien m puede desir d algunas pastiyas buenas
Como podría comunicarme con usted
Mil graciasss por estar niño bello,,bendicionesssss
These big pharma doctors are the REAL quack doctors. I was misdiagnosed for 7 years even while screaming for specific blood tests which were denied. When I went private and ordered my own tests "dr google" was right while the big pharma quack doctors were wrong. I've lost all hope in the big pharma doctors. If your doctor refuses to listen, then fire the dr and find another one. Keep on until you find one that listens vs one that lumps everyone into the same category. Be sure to leave a bad review on their site as well. It helps patients avoid those doctors.
Super helpful! Thank you for this!
Thank you for sharing this information
Thank u for this audio
♥️🙏🏼♥️
Muchas gracias, en verdad aprendi. Dios te bendiga.
Have severe Tinitus together with whatever is going on in my neck. Affects my left glands, behind my ear, left and right hands pain and tingling and severe in left foot. 24/7
Thank you so much!
I was diagnosed with RA 2002
Como se trasmite
O no es trasmitida
Thanks
Snap
I'm 67 and I am getting a lot of neck cracking now (no pain, but it is annoying). Good to see this video!
Was diagnosed this year after 2 years of just being told i have anxiety. I also dont have typical AS symptoms and also thought i had lupus ❤